Daily Archives: July 3, 2015
Family members and friends have enquired so perhaps it is helpful to explain what I understand about my medical condition.
I have an unusual and excessive growth of lipomas. These are fatty deposits. I think my body doesn’t know where to channel or how to process fatty acids so it gets dumped in random parts of my body. Some people have one or two lumps but I have a lot more. Having multiple lipomas is called Dercum’s Disease. According to NORD, “Dercum’s disease is an extremely rare disorder characterized by multiple, painful growths consisting of fatty tissue (lipomas). These growths mainly occur on the trunk, the upper arms and upper legs and are found just below the skin (subcutaneously).”
This is an uncommon condition, so rare that there is no known cause and no known cure. I am just thankful there is also no known danger. Apparently, these folks are most prone to Dercum’s Disease: older obese menopausal women. I fit none of the above four categories. None in my bloodline have it too. So I trust God for having a purpose in my pain.
Well, I need to remove these thorns in my flesh because they cause pain and discomfort. Some lipomas grow over nerves so it is painful when pressure is applied — like when Eden steps on me, or I get tackled during football, etc. Some lipomas grow in inconvenient places so it becomes uncomfortable — like on my wrist so it affects typing/writing, and on my back so I can’t lean against a hard surface (like a chair) for too long.
Yesterday’s surgery was my third. The first in 2007 was under LA, removed three lipomas. The second in 2010 under GA removed 25. This time, also under GA, another 20+ were removed. It is obvious that the lumps have increased with my weight gain; I’ve put on about 10 kilograms in the last decade. Most of the lipomas are on my arms, trunk, thighs and groin. I’m thankful that it’s not on my face, neck, palms, feet or on any joints. By God’s grace all these lumps are benign. The truth is, because this is not a life-threatening condition, it doesn’t scare me into a drastic change of lifestyle.
Unfortunately, I only bought my insurance after my first surgery so I can’t make claims for this treating pre-existing condition (the proper name treatment is called excision and biopsy of multiple lipomas). But God is good. He’s always provided for every operation and I trust him to continue to provide for my needs. For example, this time, the Lord’s providence came in the form of the surgeon, who is my church friend, and he has helped me defray the surgery costs and ensured that I have good care. I am grateful to God for him. Pray along with me that the group hospitalisation plan that the church purchased for pastors would be able to pay for this surgery.
The two to three-week recovery phase is always the most challenging because my mobility is significantly affected. Simple activities like sleeping and sitting (where I put weight on the wounds) and showering (potentially wetting it) or even using the bathroom can become troublesome. But the most arduous task is changing the dressing. Each dressing costs $2.50 (sigh) and I may have to change some wounds twice a day. There are also some wounds (on my back) that are beyond my reach so I need others to help me change it. So sometimes changing dressing and applying scar-reducing cream can take up to an hour.
I am grateful for family members and friends who have uplifted me in their prayers — thank you for raising your shield of faith for me. Every prayer counts. I am also believing that God my healer will one day heal me completely of this condition. Perhaps there’s a miracle waiting to happen with my body and I look forward to it. I have faith in God and I trust in His plans. For now, I shall look forward to my two weeks of rest and recovery, and I believe by faith that this surgery will be the last of my lipoma-related condition. Amen. God is good!
And yes, I’m going to make some lifestyle changes…